Facilitating the Genetic Counseling Process Practice-Based Skills, Second Edition

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were sitting with a friend who thought she/he might have a genetic condition,
what would you say to empathize? Try using a similar response with your
patients.


  • Assuming all patients will respond in the same way—People may have very differ-
    ent reactions to similar events. One patient may be angry, another sad, and another
    disbelieving. Patients will also respond in unique ways to your interventions.
    Therefore, you cannot give a cookbook response and get positive results with
    every patient. There is no answer key in genetic counseling, because patients differ
    in subtle and not-so-subtle ways. For example, consider a prenatal patient who has
    four children and discovers her current pregnancy is affected with trisomy 18.
    How might her experience be similar to and different from a prenatal patient who
    has undergone several years of infertility treatment, has no children, and discovers
    her pregnancy is affected with trisomy 18? Or, consider the case of a couple who
    will be returning to their home country of China. They have one daughter, and
    their second baby is a boy with a fatal disease. In Chinese culture male children
    are valued highly. The hopes of many Chinese parents rest in having a son to sup-
    port them in their old age and to carry on the family name. Consider how this
    couple’s experience might be different if they were White and from the USA.

  • Assuming all patients desire the same type and amount of primary empathy—
    Patients will vary in their preferences for counselor empathy (Duan and Hill
    1996 ; Gladstein 1983 ; Ridley and Udipi 2002 ). Some patients, wanting a close
    relationship, will desire more affective empathy from you, while others, who
    wish for a more neutral emotional relationship, will prefer less affective empathy
    (Gladstein 1983 ). One clue about the type of relationship a patient wants is his or
    her reactions to your initial affective empathy statements. If patients do not elab-
    orate and/or seem nonverbally taken aback, these may be indications they do not
    wish you to verbally express a lot of empathy. You should not take this personally
    or as a sign that something went wrong. Not every patient wants the same type of
    relationship, and not every patient will share no matter how many different ways
    you try to engage them emotionally.


4.8.2 Mistakes Due to Overt Processes



  • Not replying—Failure to respond may suggest what your patient said is not worth
    a response or is not relevant to genetic counseling (Weil 2000 ). It’s a matter of
    common decency to display some understanding of your patient (Kessler 1999 ).

  • Using clichés—Although they often have an element of truth, clichés (e.g., “You
    can always try to have another baby,” “Time heals all wounds,” “New treatments
    are coming along all the time”) may seem dismissive of the patient’s experience,
    sound “canned” or trite, and/or suggest you don’t want to make an effort to fully
    engage with them.

  • Offering false reassurance—Some beginning counselors use a fair number of
    reassuring statements (e.g., “You seem like you are great parents,” “The test results


4 Listening to Patients: Primary Empathy Skills
Free download pdf