brdta1zhi9newra_UserUpload.Net

(Nora) #1
BREATHING IN A NEW ERA
A COMPARATIVE ANALYSIS OF LUNG CANCER POLICIES ACROSS EUROPE

has been associated with lower self-esteem, lower social support, poorer social integration and higher


social conflict^18 —all of which are in turn associated with poorer health outcomes. Although early


supportive care for lung cancer patients can lead to significant improvements in quality of life, mood


and survival,^19 lung cancer specialists complain that patients are often not referred to supportive and


palliative care services until very late on in their care.^20 These evidence sources all contributed to the


development of indicators.


On other occasions—particularly where the evidence is less clear cut—we follow recommendations


from authoritative organisations and individuals. For example, Lung Cancer Europe recommends


raising lung cancer awareness among general practitioners, and that this should include increased


training and a fast-track referral process.^21 In terms of the need to support the input of patient groups


in decision making, Professor Jean-Paul Sculier of the European Respiratory Society has remarked that


advocacy for lung cancer research and funding may be lagging behind other cancers because survival


rates are so low, and patients are unable to advocate.^22 For all indicators, and for the structure of the


scorecard itself, we leant on the advice and guidance of the advisory panel—although all decisions


were ultimately made by The EIU project team.


The goal of the research programme is not to rank countries but rather to identify opportunities to


improve patient outcomes in each country. We hope to do this by helping to provide the impetus for


the development of national policies and encouragement of best practice.

Free download pdf