Opportunity 5
Recommendation
Cancer registries lack clinical data. In Finland, a clinical cancer registry could provide helpful data.
Rationale
Indicator 16: Finland’s cancer registry and vital registration data collection systems have been evaluated as being of high quality.
Clinicians have suggested that a stronger clinical component to the cancer registry could help to improve the overall care that
lung cancer patients receive. Workshop participants noted that disease- specific registries need better information, including
data on staging in a national, centralised system. They cautioned that this must not, however, add extra pressure for physicians
to input data in ‘yet another’ registry. It was suggested that, by using technological innovations, it may be possible for a data
management system to categorise and sort the data entered, simplifying the data-entry process.