8
THE ROLE OF PATIENT VALUE AND PATIENT-CENTRED
CARE IN HEALTH SYSTEMS
found that most revealed a marked disparity between the wishes of the two.^8 In a battle of aphorisms,
the doctor who knows best seems to be clashing with the customer who is always right.The rise of value-based healthcare
The preceding description is simplified to make a point about the durability of medical paternalism and
the essential backdrop it provides to current debates. Such attitudes within healthcare, however, are
only one part of a much more complex picture. Nearly every expert interviewed for this study echoed,
to some degree, the words of Eleanor Perfetto, senior vice-president of the US National Health Council:
“Paternalism is still there, but things are changing.” This shift is part of a broader transformation, which
has accelerated over the past decade, in understanding the goals of healthcare and how it should be
delivered.The transition was not inevitable on purely healthcare grounds. Provider-controlled and focused
systems have, whatever their faults, brought substantial health improvements. Life expectancy has
risen steadily for more than a century and a half across much of the world reflecting, in part, the
progress of health systems against various diseases.^9However, a series of important social and economic trends—some decades old, some more recent—
have been driving change.The most prominent of these are:
the impact on patients of various human rights movements across much of the world;
increasing expectations by individuals of all their health service providers, driven by the
experience of ever more convenient and technology-enabled consumer marketplaces;
the shift in the disease load away from acute, communicable conditions to chronic disease
requiring more continuous, integrated care;
the experience of living with such chronic diseases, through which patients typically develop their
own expertise over years of being affected;
the greater availability of information related to diseases, potential treatments and the patient
experience, especially with the spread of the internet;
the ability of improved technology to track and measure a far wider range of health outcomes
than previously; and
the need to curb the ever-growing cost of healthcare systems frequently underwritten by
governments that are facing resource limitations, with the resultant increased power that payers
are demanding from clinicians over decision-making.These developments have collectively brought into question the financial sustainability of provider-
focused and -controlled healthcare, while reducing the knowledge asymmetry and social deference
that undergirded the relative power of clinicians within health systems in the past. The old ways of- Axel Mühlbacher and Christin Juhnke
“Patient Preferences Versus Physicians’
Judgement: Does it Make a Difference in
Healthcare Decision Making?” Applied
Health Economic and Health Policy, 2013. - Jim Oeppen and James Vaupel, “Broken
Limits to Life Expectancy,” Science, 2002.