The Immortal Life of Henrietta Lacks

(Axel Boer) #1

Chapter 36: Heavenly Bodies


The Bible given to me by Gary Lacks in this chapter was Good News Bible: Today’s English
Version (American Bible Society, 1992).


Afterword


The figures I cite on the number of Americans whose tissue is being used in research, as
well as information on how that tissue is used, can be found in Elisa Eiseman and Susanne B.
Haga’s Handbook of Human Tissue Sources. For the National Bioethics Advisory Commis-
sion’s investigation into the use of human tissues in research, and its policy recommenda-
tions, see Research Involving Human Biological Materials: Ethical Issues and Policy Guid-
ance, vol. 1: Report and Recommendations of the National Bioethics Advisory Commission,
and vol. 2: Commissioned Papers (1999).
The literature on the use of human tissues in research, and the ethical and policy debate
surrounding it, is vast and includes E. W. Clayton, K. K. Steinberg, et al., “Informed Consent
for Genetic Research on Stored Tissue Samples,” Journal of the American Medical Associ-
ation 274, no. 22 (December 13, 1995): 1806–7, and resulting letters to the editor; The Stored
Tissue Issue: Biomedical Research, Ethics, and Law in the Era of Genomic Medicine, by
Robert F Weir and Robert S. Olick; Stored Tissue Samples: Ethical, Legal, and Public Policy
Implications, edited by Robert F Weir; Body Parts: Property Rights and the Ownership of Hu-
man Biological Materials, by E. Richard Gold; Who Owns Life?, edited by David Magnus, Ar-
thur Caplan, and Glenn McGee; and Body Bazaar, by Lori Andrews.
For a selection of related lawsuits, see Margaret Cramer Green v. Com missioner of In-
ternal Revenue (74 T.C. 1229); United States of America v. Dorothy R. Garber (78–5024);
Greenberg v. Miami Children’s Hospital Research Institute (264 F.Supp.2d 1064); Steven
York v. Howard W. Jones et al. (89–373-N); The Washington University v. William J.
Catalona, M.D., et al. (CV-01065 and 06–2301); Tilousi v. Arizona State University Board of
Re gents (04-CV-1290); Metabolite Laboratories, Inc., and Competitive Technologies, Inc., v.
Laboratory Corporation of America Holdings (03–1120); Association for Molecular Pathology
et al. v. United States Patent and Trademark Office; Myriad Genetics et al. (case documents
online at aclu.org/brca/); and Bearder et al. v. State of Minnesota and MDH (complaint online
at cchconline.org/pr/pro31109.php).

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