Bioethics Beyond Altruism Donating and Transforming Human Biological Materials

(Wang) #1
When people ask – I say, Yeah, that’s right, my mother [’s] name was Henrietta Lacks,
she died in 1951, Johns Hopkins took her cells and them cells are still living today,
still multiplying, still growin and spreadin if you don’t keep em frozen. Science calls
her HeLa... But I always thought it was strange, if our mother cells done so much for
medicine, how come her family can’t afford to see no doctors? Don’t make no sense.
People got rich off my mother without us even knowin about them taking her cells,
now we don’t get a dime.
Deborah, daughter of Henrietta Lacks (Skloot 2010 : 9)

3


The Immortal Life of Ethics? The


Alienation of Body Tissue, Ethics and the


Informed Consent Procedure Within


Induced Pluripotent Stem Cell Research


Casimir MacGregor, Tristan McCaughey, Megan Munsie,
Alice Pébay and Alex Hewitt

© The Author(s) 2017
R.M. Shaw (ed.), Bioethics Beyond Altruism,
DOI 10.1007/978-3-319-55532-4_3


61

C. MacGregor (*) · T. McCaughey
Monash University, Melbourne, Australia
e-mail: [email protected]


M. Munsie · A. Pébay
University of Melbourne, Melbourne, Australia


A. Hewitt
Menzies Institute of Medical Research, University of Tasmania,
Tasmania, Australia


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