Patient_Reported_Outcome_Measures_in_Rheumatic_Diseases

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Over the last years, and based in particular on input from patient research
partners, the Core Set is being revisited in particular to identify “missing” domains
that are important to patients [ 45 ]. One of the domains that is increasingly considered
as important is fatigue, as will be discussed later in this chapter [ 46 ]. Other outcomes
that were brought forward for consideration in the new Core Set are dactylitis,
enthesitis, and work participation [ 47 ].


Which of These Outcome Measures Are Used?


A systematic literature review was performed regarding clinical outcomes in PsA
analyzing 58 articles published on PsA in 2006–2010 [ 48 ]. Of these studies, around
half reported functional disability, pain, and PGA; other domains of health were less
frequently reported, including, for example, fatigue reported in only 15 % of the
studies (Table 5.3 ).


Fig. 5.1 The OMERACT
Core Set of outcome
measures for PsA [ 44 ]. All
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Table 5.3 Domains of health reported in 58 publications of PsA published 2006–2010


Patient-reported domain of health Articles reporting the domain N (% of 58 articles)
Function/disability 28 (48.0)
Pain 27 (46.6)
Patient’s global assessment 23 (39.6)
Quality of life 22 (37.9)
Skin 2 (3.4)
Fatigue 9 (15.5)
Composite scores 6 (10.3)
Morning stiffness 6 (10.3)
Utility/productivity 4 (6.9)
Other 2 (3.4)
Coping/self effi cacy 1 (1.7)

5 PROMs for Spondyloarthritis

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