305- Baron M, Hudson M, Steele R, Lo E. Canadian Scleroderma Research G. Validation of the
UCLA Scleroderma Clinical Trial Gastrointestinal Tract Instrument version 2.0 for systemic
sclerosis. J Rheumatol. 2011;38(9):1925–30. doi: 10.3899/jrheum.110060. - Frech TM, Khanna D, Maranian P, Frech EJ, Sawitzke AD, Murtaugh MA. Probiotics for the
treatment of systemic sclerosis-associated gastrointestinal bloating/distention. Clin Exp
Rheumatol. 2011;29(2 Suppl 65):S22–5. - Eypasch E, Williams JI, Wood-Dauphinee S, Ure BM, Schmulling C, Neugebauer E, et al.
Gastrointestinal quality of life index: development, validation and application of a new
instrument. Br J Surg. 1995;82:216–22. - Poole JL. Measures of hand function. Arthritis Care Res (Hoboken). 2011;63:S189–99.
- Duruoz MT, Poiraudeau S, Fermanian J, Menkes C, Amor B, Dougados M, et al. Development
and validation of a rheumatoid hand functional disability scale that assesses functional handi-
cap. J Rheumatol. 1996;23:1167–72. - Brower LM, Poole JL. Reliability and validity of the Duruoz Hand Index in persons with
systemic sclerosis (scleroderma). Arthritis Rheum. 2004;51:805–9. - Rannou F, Poiraudeau S, Berezne A, Baubet T, Le-Guern V, Cabane J, et al. Assessing dis-
ability and quality of life in systemic sclerosis: construct validities of the Cochin Hand Function
Scale, Health Assessment Questionnaire (HAQ), Systemic Sclerosis HAQ, and Medical
Outcomes Study 36-Item Short Form Health Survey. Arthritis Rheum. 2007;57:94–102. - Poiraudeau S, Chevalier X, Conrozier T, Flippo RM, Liote F, Lefevre-Colau MM, et al.
Reliability, validity, and sensitivity to change of the Cochin Hand Functional Disability Scale
in hand osteoarthritis. Osteoarthritis Cartilage. 2001;9:570–7. - Lefevre-Colau MM, Poiraudeau S, Fermanian J, Etchepare F, Alnot JY, Le Viet D, et al.
Responsiveness of the Cochin rheumatoid disability scale after surgery. Rheumatology
(Oxford). 2001;40:843–50. - Poiraudeau S, Lefevre-Colau MM, Fermanian J, Revel M. The ability of the Cochin
Rheumatoid Arthritis Hand Functional Scale to detect change during the course of disease.
Arthritis Care Res. 2000;13:296–303. - Hudak PL, Amadio PC, Bombardier C. Development of an upper extremity outcome mea-
sure: the DASH (Disabilities of the Arm, Shoulder and Hand). Am J Ind Med.
1996;29:602–8. - Kennedy CA, Beaton DE, Solway S, McConnell S, Bombardier C. The DASH outcome
measure user’s manual. 3rd ed. Toronto: Institute for Work & Health; 2011. - Gabel CP, Yelland M, Melloh M, Burkett B. A modifi ed QuickDASH-9 provides a valid
outcome instrument for upper limb function. BMC Musculoskelet Disord. 2009;10:161.
doi: 10.1186/1471-2474-10-161. - Varju C, Balint Z, Solyom AI, Farkas H, Karpati E, Berta B, et al. Cross-cultural adaptation
of the disabilities of the arm, shoulder, and hand (DASH) questionnaire into Hungarian and
investigation of its validity in patients with systemic sclerosis. Clin Exp Rheumatol.
2008;26(5):776–83. - Penta M, Thonnard JL, Tesio L. ABILHAND: a Rasch-built measure of manual ability. Arch
Phys Med Rehabil. 1998;79:1038–42. - Vanthuyne M, Smith V, Arat S, Westhovens R, De Keyser F, Houssiau FA, et al. Validation of
a manual ability questionnaire in patients with systemic sclerosis. Arthritis & Rheum.
2009;61(5):695–703. doi: 10.1002/art.24426. - Chung KC, Pillsbury MS, Walters MR, Hayward RA. Reliability and validity testing of the
Michigan Hand Outcomes Questionnaire. J Hand Surg Am. 1998;23:575–87. - Mouthon L, Rannou F, Berezne A, Pagnoux C, Arene JP, Fois E, et al. Development and vali-
dation of a scale for mouth handicap in systemic sclerosis: the Mouth Handicap in Systemic
Sclerosis scale. Ann Rheum Dis. 2007;66:1651–5. - Stevens A, Pope JE. Retest reliabilities and variability among scleroderma patients for 4 tests
of disability: support for a better measure. Presented at the Canadian Rheumatology
Association Meeting, 1995. J Rheumatol. 1995;22:1603.
11 PROMs for Systemic Sclerosis (Scleroderma)