The Washington Post - USA (2022-06-12)

(Antfer) #1
SUNDAY, JUNE 12 , 2022. THE WASHINGTON POST EZ BD B5

editor of the prestigious Journal of the
American Medical Association in a 2021
podcast. “Structural racism in an unfortunate
term,” this editor said. “Personally, I think
taking racism out of the conversation will
help. Many people like myself are offended by
the implication that we are somehow racists.”
JAMA’s Twitter account posted a tweet about
the podcast: “No physician is racist, so how
can there be structural racism in health care?”
The podcast and the tweet were deleted, and,
Villarosa writes, “the deputy editor and the
editor in chief — both white male physicians
— resigned.”
Some people are offended by what the hard
research on health-care disparities shows.
Villarosa provides the facts in abundance,
perhaps none more alarming than this one:
Black women, including those “whose income
and education should protect them,” are three
to four times more likely than White women
to die from pregnancy-related causes.
Tennis star Serena Williams was nearly one
of those fatalities. The day after delivering her
daughter by Caesarean section, Williams was
struggling to breathe and knew from previous
experience that she was having a pulmonary
embolism. She told the medical staff what was
happening and the treatment she required,
only to be ignored. Her persistent coughing
ultimately ruptured her C-section sutures,
sending her back into surgery; it was then
that a large hematoma was discovered in her
abdomen, which required still further sur-
gery. Villanova documents a number of simi-
larly harrowing stories, should facts alone not
suffice in convincing us of the crisis at hand.
But some need no convincing. Alas, we
have stories of our own.

care parity.
Equal treatment within the health-care
system, Villarosa argues, regardless of class or
social status, remains elusive because of three
primary obstacles: long-standing institution-
al and structural discrimination; implicit
biases in the medical profession resulting not
only in misdiagnoses but even blame for
being unwell; and “weathering,” which, Villa-
rosa writes, refers to the “struggle with anger
and grief triggered by everyday racist insults
and microaggressions... [which] can, over
time, deteriorate the systems of the body.”
The female reproductive system is not
immune. Villarosa cites a 2007 American
Journal of Public Health study that demon-
strates that Black women who reported
experiencing racial discrimination had dou-
ble to triple the rate of low-birth-weight
babies compared with Black women who did
not report incidents of discrimination. Sum-
ming up, Villarosa writes, “The researchers’
conclusion: low birth weights among African
American women have more to do with the
experience of racism than with race.”
A decade earlier, Villarosa stringently fol-
lowed all prescribed prenatal care during her
own pregnancy but had to ask herself if her
“lived experience as a Black woman in
America” had resulted in her daughter being
born at only 4 pounds, 13 ounces. She
recounts that a doctor “hounded” her with
questions about her lifestyle, as if she were a
habitual user of alcohol and drugs. Villarosa
wondered, “Does this doctor think I’m suck-
ing on a crack pipe the second I leave the
office?”
To combat racism in health care, Villarosa
advocates implicit-bias training for medical
personnel and champions expanding the
diversity of students, faculty and curriculums
in medical schools.
Racism cannot be combated, however, if its
existence is denied. Signs of its persistence
were apparent in remarks made by the deputy

trimester presents an elevated danger of
significant bleeding. When we told hospital
staff that we had strong misgivings about
seeing and handling our child’s remains at
home in the throes of our grief, perhaps — if
we had been a White couple — we would not
have been given the callous and untrue
response: “There’ll be nothing to see of the
demise, other than gray matter.” And when I
called our doctor when my wife developed
chills and a high fever during her labor,
perhaps I would have been instructed to bring
her to the hospital immediately.
In a searing New York Times Magazine
article in 2018, headlined “Why America’s
Black Mothers and Babies Are in a Life-or-
Death Crisis,” Linda Villarosa wrote, “People
of color, particularly black people, are treated
differently the moment they enter the health
care system.” Race, in other words, in terms of
health care in this country, is the story.
Villarosa, a journalism professor at the City
University of New York, reported on studies
that show, for example, that Blacks are less
likely than Whites to receive kidney dialysis
or transplants, coronary bypasses, appropri-
ate cardiac medications, or pain medications,
yet they are more frequently given amputa-
tions for diabetes.
In her brilliant, illuminating book, “Under
the Skin: The Hidden Toll of Racism on
American Lives and on the Health of Our
Nation,” Villarosa expands on the theme. She
discovers that racial bias within the health-
care system is a compounding factor to racial
bias in America. Meticulously researched,
sweeping in its historical breadth, damning in
its clear-eyed assessment of facts and yet
hopeful in its outlook, “Under the Skin” is a
must-read for all who affirm that Black lives
matter. It will be especially eye-opening for
anyone who believes that wealth, education
and access to quality medical services are the
great equalizers, the attainable means by
which Black Americans can achieve health-

M


y wife was 20 weeks pregnant when
she experienced a gush of rose-colored
liquid, and we sensed that our first
child was no longer moving inside her. A
panicked call to 911 brought paramedics. As
they examined my wife, the paramedics had a
casual conversation with us about our work as
graduate students at the University of Iowa.
The tenor seemed odd at that moment, but it
offered hope; surely paramedics would not be
making small talk if our child was in trouble.
After the exam was completed, we had
reason for more hope still; we were advised to
go to the hospital “for observation,” but no
need to rush. An hour later we drove ourselves
and learned, contrary to what the paramedics
intimated, that our child had died. We were
told to return home and “let nature run its
course” — that is, my wife was to deliver our
lifeless child at home into a bucket we were
given.
Two days later, my wife went into labor.
When she spiked a fever and had chills, I
called our doctor; he told me to give her an
aspirin. But she got worse. I called paramed-
ics. I was terrified that along with our child I
would lose my wife, who was now in our
bathtub, unconscious and hemorrhaging,
alongside “the demise” she had delivered. She
was rushed to the hospital for emergency
surgery to try to save her life.
Thank goodness my wife survived, but 30
years later she and I remain haunted by our
experience and the conviction that race
played a role in this story. Had we been White,
like all the medical personnel who’d attended
us, rather than Black, maybe the first para-
medics would have leveled with us. And
maybe, at the hospital, we would have been
given the option of a surgical evacuation
instead of being sent home to endure a risky
second-trimester fetal demise. According to
the University of California at Davis depart-
ment of obstetrics and gynecology, a fetal
demise delivered at home in the second

Book World

UNDER THE
SKIN
The Hidden Toll
of Racism on
American Lives
and on the
Health of Our
Nation
By Linda
Villarosa
Doubleday.
269 pp. $30

ESSENTIAL
LABOR
Mothering as
Social Change
By Angela
Garbes
Harper Wave.
222 pp. $25.99

Racism’s ill

e≠ects on the

health-care

system — and

the body itself

HEALTH REVIEW BY JERALD WALKER

my mother relaxing in that way. She had nine
babies and 10 pregnancies, and at least 10
years of breastfeeding.
Garbes shows in this book that labor and
ease are both essential acts of care. I find
relaxation difficult, probably in part because I
didn’t see my mother in repose. I don’t want
my own child to struggle as much to balance
work with play, exertion with rest.
Whether our children and the future of our
lives are expansive or stunted is partially
dependent on the acts of leaders — legislators,
executives, others in positions of power — to
enact the kind of change that could begin to
remunerate and support caregiving. I work
for the University of California, one of the
largest employers in the state with a quarter
of a million workers. This year, my union is
fighting for new contract protections, includ-
ing dependent health-care coverage, expand-
ed paid leave and increased access to afford-
able child care. These kinds of protections are
needed by caregivers beyond the UC system
and outside California, too.
But as Garbes makes clear, the quality of
our lives and our children’s lives is also
dependent on all the tiny choices we make
each day. “We can’t afford to wait around for
government support,” she writes. Raising a
child is “a social responsibility.” This book
exhorts us to do it right.

better working conditions? Such withholding
is not without precedent, as Garbes notes,
citing the Iceland women’s strike of 1975. But
these organized actions are understandably
rare.
While I was reading for and writing this
review, my child was cared for by day-care
teachers and by their father, David, who also
cooked and brought me lunch and cleaned
our apartment. I often stopped working to
breastfeed and pump. We could afford day
care because California passed legislation last
July that made this essential service free for
us, as a subsidized family, for the school year.
We are all, no matter our employment
status, race, gender or level of education,
dependent on the care of others both in and
outside the home. This is Garbes’s most
important point — one she reiterates through-
out this book and her 2018 book, “Like a
Mother.”
She consistently returns to the possibilities
of mothering as social change. This change
looks like interdependent relationships with-
in the family and beyond, and communities
that sustain themselves through mutual acts
of care. It looks like recognition of the
pleasures of physical movement, curiosity
about the living things that surround us in
nature, belief in the inherent worthiness of all
people.
I realized a few days ago, lying on my back
on the couch, as my 11-month-old played with
my spouse, that I don’t have any memories of

us to where we are — colonialism and its
afterlives, lack of support for caregivers, racial
disparities — Garbes also looks beyond the
individual to the wider webs enmeshing us
all.
The first part of this book focuses on the
importance of caregiving and how underval-
ued it is in American society. (By “mothering”
she means caregiving, regardless of sex or
relationship to the person being cared for.)
The second half puts forward the idea that
mothering can cure what ails us, that we can
raise a generation of children who will force
change in our values and our politics.
Garbes’s Filipino heritage has given her a
particular familiarity with the subject she
addresses. Filipinos “are the care workers of
the world,” as she puts it. She notes that the
pandemic highlighted the disparities in
American society, particularly regarding im-
migrants. “While Filipina nurses comprise
just 4 percent of all the nurses in the United
States, they account for 34 percent of nursing
deaths from COVID-19,” she writes.
Caring is essential work, and yet, in Ameri-
can culture, it is undervalued. Rectifying this
is a challenge, she acknowledges, since care
work is often motivated by feelings for those
cared for — a fact that both justifies, for many,
its nature as un- or underpaid, and that puts
caregivers in a bind. How do you withhold the
labor that literally keeps your child, others’
children, sickly adults, aging parents and
grandparents alive, to push for higher pay and

F


or Angela Garbes, the pandemic served
as a revelation: Stuck at home with her
husband and two daughters, cut off from
social connections, enraged by the injustices
dominating the news, she realized that the
one place she could make a difference was
there, raising her children. Giving them the
knowledge, values and strength they would
need as adults. And writing a book to spread
the word.
“Over the course of the pandemic many
people came to understand that American life
is not working for families,” she writes in
“Essential Labor: Mothering as Social
Change.” As women dropped out of the
workforce to be with homebound children,
Garbes conceived of the idea that this turbu-
lent period provided a chance to reimagine
our approach to mothering.
Equal parts manifesto, love letter, personal
narrative and cultural history, Garbes’s book
grounds itself in the day-to-day realities of
parenting, that most constant job of caring.
But by tying together the factors that brought

How mothers can be

changemakers, at home

and in the community

PARENTING REVIEW BY SARAH HOENICKE FLORES

Jerald Walker is a professor of African American
literature and creative writing at Emerson College.
His latest book, “How to Make a Slave and Other
Essays,” was a nonfiction finalist for the 2020
National Book Award.

Sarah Hoenicke Flores is a writer in Southern
California.

ISTOCK
Free download pdf