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Personalized Medicine Coalition
Personalized Medicine Coalition ( http://www.personalizedmedicinecoalition.org/ ),
located in Washington DC, is an independent, non-profi t organization of leading
pharmaceutical, diagnostic, biotechnology and information technology companies,
as well as major academic institutions and governmental agencies. Members of the
coalition are shown in Table 20.2.
The Personalized Medicine Coalition (PMC) was formed to fulfi ll a need for a
nationwide, multi-industry policy consensus for personalized medicine. It provides
a structure for achieving consensus positions on crucial public policy issues and
serves as a forum for debate and education. The strength of the PMC is its multi-
disciplinary approach to regulatory, scientifi c, legal and public policy issues. Its
functions are:
- To provide forums for public policy discussions
- Personalized medicine: science, policy, and economics
- Public attitudes toward genetics
- Personalized medicine and cancer
Table 20.1 Players in the development of personalized medicinePlayer Recommended role
Academic medicine Improved undergraduate education in molecular medicine
Development of a new system of disease classifi cation based on
emerging molecular information
Research in molecular medicine
Bioinformatic sector Development of effective clinical decision support tools for
integration into electronic health records
Data collection in targeted personalized medicine areas
Biotechnology industry Research and development in molecular medicine technologies
Clinical laboratories Providing companion diagnostic tests for therapeutic agents
Governments Generation of transparent privacy laws
Financial support for research in personalized medicine
Health insurance carriers Providing coverage for personalized medicine
Supporting cost-effectiveness studies of personalized healthcare
Organizations for promotion
of personalized medicine
Various national and international associations of companies,
academic institutions, professionals and lay persons
Patients Increasing participation in health and well-being initiatives
Providing data for research purposes, including social networks
Pharmaceutical companies Development of personalized medicines
Collaboration with molecular diagnostic companies
Physicians in private practice Continuing education in personalized medicine
Introduction of tested personalized medicine approaches in practice
Regulatory agencies Regulations to safeguard patient safety
Expediting decisions for approval of new personalized therapies
© Jain PharmaBiotech
20 Development of Personalized Medicine