3 The Immortal Life of Ethics? The Alienation of Body Tissue ... 81factor was the professional quality of the video production and narra-
tion—the high quality of the visuals and sound may have helped par-
ticipants’ improved understanding.
The way in which the interactive consent procedure was designed
means that this method and process could be applied to other stem
cell science and scientific studies. The use of video animation within
the interactive consent process is also a method that could be incorpo-
rated into existing projects. We would argue that an interactive consent
process should become a widely adopted model, as it helps to ensure
all research participants are receiving similar information, reducing the
inconsistencies in consent information shown to negatively affect other
fields (Bollschweiler et al. 2008 ; Ryan et al. 2008 ; Synnot et al. 2014 ).
It is the professional, legal and moral duty of the researcher to provide
information and informed participants to obtain their consent. Our
research demonstrates that current standard models of consent are fail-
ing participants. We believe the interactive consent model sets a new
standard for informed consent in iPSC research and provides a model
that can help researchers inform their participants to avoid any contro-
versy in the future.
Conclusion
This chapter sought to explore issues relating to the ethics and informed
consent procedures in iPSC research within the context of a study
that collected tissue samples to examine eye disease. We have outlined
how, within iPSC research, a number of ethical issues need to be con-
sidered when engaging with research participants, such as privacy and
poor recall of informed consent procedures. This chapter has outlined
an attempt to improve ethics and informed consent procedures and
research understanding and has argued that scientific research must set a
new standard for achieving informed consent. Our study reaffirms other
research, such as that conducted by Rowbotham et al. ( 2013 ), that an
interactive informed consent procedure can improve research partici-
pant comprehension about their research involvement, its processes
and its risks. Interactive consent procedures, using a video animation,
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