221- Berard R, Laxer RM. Improving the quality of care in children with juvenile idiopathic arthri-
tis: a step in the right direction. J Rheumatol. 2011;38:789–90. - Brunner HI, Ravelli A. Developing outcome measures for paediatric rheumatic diseases. Best
Pract Res Clin Rheumatol. 2009;23:609–24. - Brunner HI, Giannini EH. Health-related quality of life in children with rheumatic diseases.
Curr Opin Rheumatol. 2003;15:602–12. - Filocamo G, Consolaro A, Solari N, Palmisani E, Dalprà S, et al. Recent advances in quantita-
tive assessment of juvenile idiopathic arthritis. Ann Paediatr Rheum. 2012;1:84–96. - Duffy CM. Measurement of health status, functional status, and quality of life in children with
juvenile idiopathic arthritis: clinical science for the pediatrician. Pediatr Clin North Am.
2005;52:359–72. v. - Chira P, Sandborg C. Adolescent rheumatology transitional care: steps to bringing health pol-
icy into practice. Rheumatology (Oxford). 2004;43:687–9. - Giannini EH, Ruperto N, Ravelli A, Lovell DJ, Felson DT, Martini A. Preliminary defi nition
of improvement in juvenile arthritis. Arthritis Rheum. 1997;40:1202–9. - Wallace CA, Giannini EH, Huang B, Itert L, Ruperto N. American College of Rheumatology
provisional criteria for defi ning clinical inactive disease in select categories of juvenile idio-
pathic arthritis. Arthritis Care Res (Hoboken). 2011;63:929–36. - Magni-Manzoni S, Ruperto N, Pistorio A, Sala E, Solari N, Palmisani E, et al. Development
and validation of a preliminary defi nition of minimal disease activity in patients with juvenile
idiopathic arthritis. Arthritis Rheum. 2008;59:1120–7. - Consolaro A, Ruperto N, Bazso A, Pistorio A, Magni-Manzoni S, Filocamo G, et al.
Development and validation of a composite disease activity score for juvenile idiopathic arthri-
tis. Arthritis Rheum. 2009;61:658–66. - Ruperto N, Ravelli A, Murray KJ, Lovell DJ, Andersson-Gare B, Feldman BM, et al.
Preliminary core sets of measures for disease activity and damage assessment in juvenile sys-
temic lupus erythematosus and juvenile dermatomyositis. Rheumatology (Oxford).
2003;42:1452–9. - Ruperto N, Ravelli A, Cuttica R, Espada G, Ozen S, Porras O, et al. The pediatric rheumatol-
ogy international trials organization criteria for the evaluation of response to therapy in juve-
nile systemic lupus erythematosus: prospective validation of the disease activity core set.
Arthritis Rheum. 2005;52:2854–64. - Ruperto N, Ravelli A, Oliveira S, Alessio M, Mihaylova D, Pasic S, et al. The Pediatric
Rheumatology International Trials Organization/American College of Rheumatology provi-
sional criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus.
Prospective validation of the defi nition of improvement. Arthritis Rheum. 2006;55:355–63. - Ruperto N, Ravelli A, Pistorio A, Ferriani V, Calvo I, Ganser G, et al. The provisional Pediatric
Rheumatology International Trial Organization/American College of Rheumatology/European
League Against Rheumatism disease activity core set for the evaluation of response to therapy
in juvenile dermatomyositis: a prospective validation study. Arthritis Rheum. 2008;59:4–13. - Apaz MT, Saad-Magalhaes C, Pistorio A, Ravelli A, de Oliveira SJ, Marcantoni MB, et al.
Health-related quality of life of patients with juvenile dermatomyositis: results from the pedi-
atric rheumatology international trials organisation multinational quality of life cohort study.
Arthritis Rheum. 2009;61:509–17. - Hasija R, Pistorio A, Ravelli A, Demirkaya E, Khubchandani R, Guseinova D, et al. Approaches
for the treatment of new onset and fl ared juvenile dermatomyositis: an international multi-
center PRINTO study. Arthritis Rheum. 2011;63:3142–52. - Lazarevic D, Pistorio A, Palmisani E, Miettunen P, Ravelli A, Pilkington C, et al. The PRINTO
criteria for clinically inactive disease in juvenile dermatomyositis. Ann Rheum Dis.
2013;72:686–93. - Ruperto N, Pistorio A, Ravelli A, Rider LG, Pilkington C, Oliveira S, et al. The pediatric rheu-
matology international trials organization provisional criteria for the evaluation of response to
therapy in juvenile dermatomyositis. Arthritis Care Res. 2010;62:1533–41.
8 PROMs for Juvenile Idiopathic Arthritis