223
Juvenile dermatomyositis disease activity collaborative study group. J Rheumatol.
2001;28:1106–11.
- Brunner HI, Klein-Gitelman MS, Miller MJ, Barron A, Baldwin N, Trombley M, et al.
Minimal clinically important differences of the childhood health assessment questionnaire.
J Rheumatol. 2005;32:150–61. - Ruperto N, Ravelli A, Migliavacca D, Viola S, Pistorio A, Duarte C, et al. Responsiveness of
clinical measures in children with oligoarticular juvenile chronic arthritis. J Rheumatol.
1999;26:1827–30. - Dempster H, Porepa M, Young N, Feldman BM. The clinical meaning of functional outcome
scores in children with juvenile arthritis. Arthritis Rheum. 2001;44:1768–74. - Lam C, Young N, Marwaha J, McLimont M, Feldman BM. Revised versions of the childhood
health assessment questionnaire (CHAQ) are more sensitive and suffer less from a ceiling
effect. Arthritis Rheum. 2004;51:881–9. - Filocamo G, Sztajnbok F, Cespedes-Cruz A, Magni-Manzoni S, Pistorio A, Viola S, et al.
Development and validation of a new short and simple measure of physical function for juve-
nile idiopathic arthritis. Arthritis Rheum. 2007;57:913–20. - Meiorin S, Filocamo G, Pistorio A, Magni-Manzoni S, Sztajnbok F, Cespedes-Cruz A, et al.
Impact of involvement of individual joint groups on subdimensions of functional ability scales
in juvenile idiopathic arthritis. Clin Exp Rheumatol. 2009;27:527–33. - Consolaro A, Ruperto N, Filocamo G, Lanni S, Bracciolini G, Garrone M, et al. Seeking
insights into the epidemiology, treatment and outcome of childhood arthritis through a multi-
national collaborative effort: introduction of the EPOCA study. Pediatr Rheumatol Online
J. 2012;10:39. - Lovell DJ, Howe S, Shear E, Hartner S, McGirr G, Schulte M, et al. Development of a dis-
ability measurement tool for juvenile rheumatoid arthritis. The juvenile arthritis functional
assessment scale. Arthritis Rheum. 1989;32:1390–5. - Howe S, Levinson J, Shear E, Hartner S, McGirr G, Schulte M, et al. Development of a dis-
ability measurement tool for juvenile rheumatoid arthritis. The juvenile arthritis functional
assessment report for children and their parents. Arthritis Rheum. 1991;34:873–80. - Wright FV, Kimber JL, Law M, Goldsmith CH, Crombie V, Dent P. The juvenile arthritis
functional status index (JASI): a validation study. J Rheumatol. 1996;23:1066–79. - Iglesias MJ, Cuttica RJ, Herrera CM, Micelotta M, Pringe A, Brusco MI. Design and valida-
tion of a new scale to assess the functional ability in children with juvenile idiopathic arthritis
(JIA). Clin Exp Rheumatol. 2006;24:713–8. - Gong GW, Barrera M, Beyene J, Bhat S, Carcao M, Lord S, et al. The gap study (GapS) inter-
view—developing a process to determine the meaning and determinants of quality of life in
children with arthritis and rheumatic disease. Clin Exp Rheumatol. 2007;25:486–93. - Adunuri NR, Feldman BM. Critical appraisal of studies measuring quality of life in juvenile
idiopathic arthritis. Arthritis Care Res (Hoboken). 2015;67:880–4. - DJ, Ruperto N, Mouy R, Paz E, Rubio-Pérez N, Silva CA, et al. Long-term safety, effi cacy, and
quality of life in patients with juvenile idiopathic arthritis treated with intravenous abatacept
for up to seven years. Arthritis Rheumatol. 2015;67:275–970. - Cespedes-Cruz A, Gutierrez-Suarez R, Pistorio A, Ravelli A, Loy A, Murray KJ, et al.
Methotrexate improves the health-related quality of life of children with juvenile idiopathic
arthritis. Ann Rheum Dis. 2008;67:309–14. - Manners PJ, Diepeveen DA. Prevalence of juvenile chronic arthritis in a population of 12-year-
old children in urban Australia. Pediatrics. 1996;98:84–90. - Tucker LB. Whose life is it anyway? Understanding quality of life in children with rheumatic
diseases. J Rheumatol. 2000;27:8–11. - Burgos-Vargas R. Assessment of quality of life in children with rheumatic disease. J Rheumatol.
1999;26:1432–5. - Coulton CJ, Zborowsky E, Lipton J, Newman AJ. Assessment of the reliability and validity of
the arthritis impact measurement scales for children with juvenile arthritis. Arthritis Rheum.
1987;30:819–24.
8 PROMs for Juvenile Idiopathic Arthritis