© Springer International Publishing Switzerland 2016 405
Y. El Miedany (ed.), Patient Reported Outcome Measures in Rheumatic Diseases,
DOI 10.1007/978-3-319-32851-5_17
Chapter 17
PROMs vs. PREMs (Patient-Reported
Experience Measures)
Marwan Bukhari
Patient-Reported Outcome Measures (PROMs)
Versus Patient-Reported Experience Measures (PREMs)
Capturing the patient’s perspective of their condition and treatment is a core ele-
ment in the management of chronic conditions such as rheumatoid arthritis.
Overarching objectives for engaging with and actively seeking patient input in dis-
ease management is to improve the quality of care and to monitor outcomes of the
treatment approach selected.
Patient-reported outcome measures (PROMs) provide an assessment of the
patient’s health status or health-related quality of life ( HRQoL ) at a single time
point. Importantly, PROMs collect information directly from the patient without
interpretation by clinicians or others and therefore should refl ect health issues most
relevant to the patients themselves. Examples of PROMs include measures of symp-
toms, activities, and limitations. More recently, PROMs have also been used in
clinical trials to address issues of patient satisfaction, compliance with treatment,
and treatment preferences [ 1 ]. An important distinction between measures of satis-
faction and PROMs such as HRQoL is that they address the process of treatment
rather than its outcome [ 2 ].
While patient satisfaction surveys are increasingly used to gauge performance,
they differ from patient-reported experience measures (PREMs). Unlike general
satisfaction surveys, PREMs aim to enhance the patient experience of care and
M. Bukhari , M.B.B.S., M.Sc., Ph.D., F.R.C.P. (*)
Department of Rheumatology , Royal Lancaster Infi rmary ,
Ashton Road , Lancaster , Lancashire LA1 4RP , UK
e-mail: [email protected]