416
- NICE QS15: Quality standard for patient experience in adult NHS services. 2012. http://www.guid-
ance.nice.org.uk/QS15. Accessed July 2014. - Equity and excellence: liberating the NHS. 2010. http://www.offi cial-documents.gov.uk/docu-
ment/cm78/7881/7881.pdf. Accessed Feb 2013. - HQIP RA Audit. Healthcare Quality Improvement Partnership (HQIP) National clinical audit
for rheumatoid and early infl ammatory arthritis. http://www.rheumatology.org.uk/resources/
audits/national_ra_audit/information_pack.aspx. Patient data collection form—follow up at 3
months. Accessed July 2014. - How to Achieve World Class Commissioning Competencies. Practical tips for NHS Com-
missioners. Published October 2008. http://webarchive.nationalarchives.gov.uk/201301071
05354/http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalas-
set/dh_089019.pdf. Accessed Mar 2013. - The NHS Outcomes Framework 2013/14. https://www.wp.dh.gov.uk/publications/
fi les/2012/11/121109-NHS-Outcomes-Framework-2013-14.pdf. Accessed Feb 2013. - Draper M, Cohen P, Buchan H, et al. Seeking consumer views: what use are results of hospital
patient satisfaction surveys? International J Qual Health Care. 2001;13(6):463–8. - Crawford MJ, Rutter D, Manley C, et al. Systematic review of involving patients in the plan-
ning and development of health care. Br Med J. 2002;325(7375):1263. - Davies E, Cleary PD. Hearing the patient’s voice? Factors affecting the use of patient survey
data in quality improvement. Qual Saf Health Care. 2005;14(6):428–32. - Richards N, Coulter A. Is the NHS becoming more patient-centred? Trends from the national
surveys of NHS patients in England 2002-07. Published September 2007. http://www.fundsis.
org/docs_act/99_Trends_2007_fi nal%5B1%5D.pdf. Accessed March 2013. - Davies E, Shaller D, Edgman-Levitan S, et al. Evaluating the use of a modifi ed CAHPS survey
to support improvements in patient-centred care: lessons from a quality improvement collab-
orative. Health Expect. 2008;11(2):160–76. - Bate P, Robert G. Experience-based design: from redesigning the system around the patient to
co-designing services with the patient. Qual Saf Health Care. 2006;15(5):307–10. - Forbat L, Cayless S, Knighting K, et al. Engaging patients in health care: an empirical study of
the role of engagement on attitudes and action. Patient Educ Couns. 2009;74(1):84–90. - Land L, Hathorn E, Ross JD. Using patient experience to measure the quality of HIV care. Int
J STD AIDS. 2011;22(7):366–7. - Richards N, Coulter A. Is the NHS becoming more patient-centred? Trends from the national
surveys of NHS patients in England 2002–07. Oxford: Picker Institute Europe; 2007. - Sequist TD, Von Glahn T, Li A, et al. Measuring chronic care delivery: patient experiences and
clinical performance. Int J Qual Health Care. 2012;24(3):206–13. - Developing a patient reported experience measure for chronic obstructive pulmonary disease
(PREM-COPD). Final report. http://www.rcplondon.ac.uk/sites/default/fi les/developinga
patient_reported_experience_measure_for_chronic_obstructive_pulmonary_disease_2.pdf.
Accessed Feb 2013 - Lagha E, Noble A, Smith A, et al. Patient reported experience measures (PREMs) in chronic
heart failure. J R Coll Physicians Edinb. 2012;42(4):301–5. - Diabetes Patient Experience Project (DPEP). http://www.diabetes.nhs.uk/information_and_data/.
Accessed Mar 2013. - Christie D. Developing the National Paediatric Diabetes Audit Patient Reported Experience
Measure. Diabetes Care Child Young People. 2012;1(2):47–8. - Drewes HW, de Jong-van Til JT, Struijs JN, Baan CA, Tekle FB, Meijboom BR, Westert
GP. Measuring chronic care management experience of patients with diabetes: PACIC and
PACIC+ validation. Int J Integrated Care 2012;12:1–11. - Sokka T, Rannio T, Khan NA. Disease activity assessment and patient-reported outcomes in
patients with early rheumatoid arthritis. Rheum Dis Clin North Am. 2012;38(2):299–310. - Dougados M, Brault Y, Logeart I, et al. Defi ning cut-off values for disease activity states and
improvement scores for patient-reported outcomes: the example of the Rheumatoid Arthritis
Impact of Disease (RAID). Arthritis Res Ther. 2012;14(3):R129.
M. Bukhari