Patient_Reported_Outcome_Measures_in_Rheumatic_Diseases

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444


D
DASH questionnaire Disability Arm
Shoulder and Hand questionnaire
(DASH) , 348
Dermatological Life Quality Index (DLQI) , 133
Diabetes Patient Experience
Project (DPEP) , 408
Differential item functioning (DIF) , 54
Disabilities of the arm, shoulder and hand
(DASH) outcome questionnaire ,
297 , 339–340
Disease-specifi c questionnaires/measures , 362
Dougados Functional Index (DFI) , 127


E
Educational Needs Assessment
Tool (ENAT) , 393
Electronic Patient-Reported Outcome
Measures (ePROMs)
advantages , 373–374
application systems and device
computer/Web-based documentation
software , 376
heterogeneity , 375
mobile electronic devices , 376
new care management , 377
registered user-restricted , 375
smartphones , 377
website-based systems , 377
clinical decision making , 371–372
data security , 380–381
design and technical aspects , 380
disadvantages , 373–374
disease management , 114
educational tasks , 381
electronic format , 114
evaluation , 377–379
legal and regulatory aspects , 381
monitoring response , 114
oncology clinical practice , 113
paper-based assessments , 372
paper-based questionnaires , 113
prerequisites , 375
telemedicine , 379
websites , 372
Electronic Recording of Outcome Measures
for Infl ammatory arthritis and
Ankylosing spondylitis (EROMIA)
system , 374
Entesopathy , 423
ePROMs. See Electronic Patient-Reported
Outcome Measures (ePROMs)
EULAR Sjogren’s Syndrome Disease Activity
Index (ESSDAI) , 320–323


EULAR Sjogren’s Syndrome Patient-Reported
Index (ESSPRI) , 313 , 324
European League Against Rheumatism
(EULAR) , 420
EuroQol-5D (EQ-5D) , 293

F
Fibrofatigue Scale (FFS) , 183
Fibromyalgia Bladder Index (FBI) , 183
Fibromyalgia Health Assessment
Questionnaire (FHAQ) , 184
Fibromyalgia Impact Questionnaire (FIQ) ,
180–181
Fibromyalgia syndrome (FMS)
brain level alterations , 176
cognitive impairment , 177
complex constructs , 180
concomitant diseases , 179
cultural issues , 178
fatigue , 177
FBI , 183
FFS , 183
FHAQ , 184
FIQ , 180–181
FSQ , 184
gender issues , 177–178
ICAF , 183
Multi-dimensional Questionnaire , 184
OMERACT , 180
pain , 177
prevalence , 176
psychometric properties , 184–185
reliability , 185–186
responsiveness , 186
sleep , 177
symptoms , 176 , 179
validity , 186
VASFIQ , 183
Functional Index for Hand Osteoarthritis
(FIHOA) , 271–272
Function and Symptom Questionnaire
(FSQ) , 184

G
Glasgow Ultrasound Enthesitis Scoring
System (GUESS) tool , 423
Gout
chronic disease , 228
clinical trials , 228
defi nition , 226
EQ-5D tests , 242
GAQ , 240
gout fl ares , 228

Index
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