Patient_Reported_Outcome_Measures_in_Rheumatic_Diseases

82

Table 3.9 Measures and indices of activity or damage, or both, used to assess and monitor patients
with different rheumatic diseases

Disease Indices/measures

All rheumatic diseases Health assessment questionnaire (HAQ) [ 50 ]

HAQII [ 53 ]

Multidimensional HAQ (MDHAQ) [ 51 , 52 ]

Rheumatoid arthritis ACR Core Data Set [ 68 , 151 , 152 ]

Disease activity score (DAS) [ 125 , 126 ]

Clinical disease activity index (CDAI); simplifi ed disease activity

index (SDAI) [ 127 ]

Routine assessment of patient index data 3 (RAPID3), based on 3 RA

Core Data Set measures from self-report on the MDHAQ: physical

function, pain, patient estimate of global status [ 77 , 78 ]

Patient activity scale (PAS/PAS-II) [ 129 ]

OMERACT criteria for minimal disease activity [ 153 ]

Sharp score [ 154 – 156 ]

van der Heijde modifi ed sharp score [ 157 , 158 ]

Larsen score [ 159 , 160 ]

Rantigen score [ 161 ]

Psoriatic arthritis ACR Core Data Set [ 68 , 151 , 152 ]

Disease activity score (DAS) [ 125 , 126 ]

Psoriatic arthritis response criteria (PsARC) [ 162 ]

Psoriasis area and severity index (PASI) [ 130 ]

Systemic lupus

erythematosus

SLE disease activity index (SLEDAI) [ 132 ]

British Isles Lupus Assessment Group (BILAG) index [ 133 ]

Systemic lupus activity measure (SLAM) [ 134 ]

Lupus activity index (LAI) [ 135 ]

European consensus lupus activity measurement (ECLAM) [ 136 , 137 ]

Systemic Lupus International Collaborating Clinics (SLICC)/ACR

damage index [ 138 ]

Ankylosing

spondylitis

Bath ankylosing spondylitis disease activity index (BASDAI) [ 163 ]

Modifi ed Stoke ankylosing spondylitis spin score (mSASSS) [ 164 ]

Bath ankylosing spondylitis radiology index (BASRI) [ 165 ]

Bath ankylosing spondylitis functional index (BASFI) [ 141 ]

Bath ankylosing spondylitis metrology index [ 142 ]

Dougados functional index (DFI) [ 144 ]

Vasculitis Birmingham vasculitis activity score (BVAS) [ 145 ]

Vasculitis activity index (VAI) [ 166 ]

Birmingham vasculitis damage index [ 146 ]

Wegener

granulomatosis

BVAS-derived Wegener granulomatosis activity index [ 147 ]

Wegener granulomatosis damage index [ 148 ]

Osteoarthritis Western Ontario McMaster osteoarthritis index (WOMAC) [ 149 ]

Fibromyalgia Fibromyalgia impact questionnaire (FIQ) [ 150 ]

T. Pincus et al.