17
- Wolfe F, Pincus T. Listening to the patient: a practical guide to self-report questionnaires in
clinical care. Arthritis Rheum. 1999;42:1797–808. - Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life. A concep-
tual model of patient outcomes. JAMA. 1995;273:59–65. - World Health Organization (WHO). International classification of impairments, disabilities,
and handicaps: a manual of classification relating to the consequences of disease, published in
accordance. 1980. http://apps.who.int/iris/handle/10665/41003. - World Health Organization (WHO). World health organization constitution. Basic Doc 1948.
http://www.who.int/governance/eb/who_constitution_en.pdf. - Boonen A, Stucki G, Maksymowych W, Rat AC, Escorpizo R, Boers M. The OMERACT-ICF
reference group: integrating the ICF into the OMERACT process: opportunities and chal-
lenges. J Rheumatol. 2009;36:2057–60. - Stucki G, Cieza A. The international classification of functioning, disability and health (ICF)
core sets for rheumatoid arthritis: a way to specify functioning. Ann Rheum Dis. 2004;63
Suppl 2:ii40–5. - ten Klooster PM, Veehof MM, Taal E, van Riel PLCM, van de Laar MAFJ. Changes in priori-
ties for improvement in patients with rheumatoid arthritis during 1 year of anti-tumour necro-
sis factor treatment. Ann Rheum Dis. 2007;66:1485–90. - Bartlett SJ, Bykerk VP, Cooksey R, Choy EH, Alten R, Christensen R, et al. Feasibility and
domain validation of rheumatoid arthritis (RA) flare core domain set: report of the OMERACT
2014 RA flare group plenary. J Rheumatol. 2015;42(11):2185–9. - Gignac MAM, Backman CL, Davis AM, Lacaille D, Mattison CA, Montie P, et al.
Understanding social role participation: what matters to people with arthritis? J Rheumatol.
2008;35:1655–63. - Aaronson NK, Muller M, Cohen PD, Essink-Bot ML, Fekkes M, Sanderman R, et al.
Translation, validation, and norming of the Dutch language version of the SF-36 health survey
in community and chronic disease populations. J Clin Epidemiol. 1998;51:1055–68. - Vermeer M, Kuper HH, Hoekstra M, Haagsma CJ, Posthumus MD, Brus HLM, et al.
Implementation of a treat-to-target strategy in very early rheumatoid arthritis: results of the
Dutch Rheumatoid Arthritis Monitoring remission induction cohort study. Arthritis Rheum.
2011;63:2865–72. - Guyatt GH, Feeny DH, Patrick DL. Measuring health-related quality of life. Ann Intern Med.
1993;118:622–9. - Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and
quality of life. Med Care. 1989;27:S217–32. - Linde L, Sørensen J, Ostergaard M, Hørslev-Petersen K, Hetland ML. Health-related quality
of life: validity, reliability, and responsiveness of SF-36, 15D, EQ-5D [corrected] RAQoL, and
HAQ in patients with rheumatoid arthritis. J Rheumatol. 2008;35:1528–37. - Hagen KB, Smedstad LM, Uhlig T, Kvien TK. The responsiveness of health status measures
in patients with rheumatoid arthritis: comparison of disease-specific and generic instruments.
J Rheumatol. 1999;26:1474–80. - Russell AS, Conner-Spady B, Mintz A, Maksymowych WP. The responsiveness of generic
health status measures as assessed in patients with rheumatoid arthritis receiving infliximab.
J Rheumatol. 2003;30:941–7. - Buchbinder R, Bombardier C, Yeung M, Tugwell P. Which outcome measures should be used
in rheumatoid arthritis clinical trials? Clinical and quality-of-life measures’ responsiveness to
treatment in a randomized controlled trial. Arthritis Rheum. 1995;38:1568–80. - Verhoeven AC, Boers M, van Der Linden S. Responsiveness of the core set, response criteria,
and utilities in early rheumatoid arthritis. Ann Rheum Dis. 2000;59:966–74. - Colwell HH, Hunt BJ, Pasta DJ, Palo WA, Mathias SD, Joseph-Ridge N. Gout assessment
questionnaire: Initial results of reliability, validity and responsiveness. Int J Clin Pract.
2006;60:1210–7. - Meenan RF, Gertman PM, Mason JH. Measuring health status in arthritis. The arthritis impact
measurement scales. Arthritis Rheum. 1980;23:146–52.
1 PROMs and Quality of Care