Patient_Reported_Outcome_Measures_in_Rheumatic_Diseases

Patient Reported Outcome Measures in Rheumatic Diseases Yasser El Miedany Editor 123 http://www.ebook3000.com ...

Patient Reported Outcome Measures in Rheumatic Diseases http://www.ebook3000.com ...

http://www.ebook3000.com ...

Yasser El Miedany Editor Patient Reported Outcome Measures in Rheumatic Diseases http://www.ebook3000.com ...

ISBN 978-3-319-32849-2 ISBN 978-3-319-32851-5 (eBook) DOI 10.1007/978-3-319-32851- Library of Congress Control Number: 201694414 ...

v Pref ace The recently introduced patient-centered approach mandated a shift of the rheuma- tologist’s understanding toward pla ...

vi the reader a clear guide toward implementation in real-life practice. Focusing on the major values of “meaningful outcomes” i ...

vii Contents 1 PROMs and Quality of Care .................................................................. 1 Martijn A. H. Oude ...

viii 12 PROMs for Sjögren’s Syndrome ........................................................... 309 Mohamed Osama Hegazi , Sall ...

ix Contributors Xenofon Baraliakos , MD Rheumazentrum Ruhrgebiet , Herne , Germany Ruhr-University Bochum , Herne , Germany Mart ...

x Laure Gossec , MD, PhD Department of Rheumatology , AP-HP, Pitié Salpêtrière Hospital, UPMC, Sorbonne Universitées , Paris , F ...

xi Angelo Ravelli , MD Universita degli studi di Genova , Genoa , Italy Pediatria 2, Reumatologia , Istituto Giannina Gaslini , ...

© Springer International Publishing Switzerland 2016 1 Y. El Miedany (ed.), Patient Reported Outcome Measures in Rheumatic Disea ...

2 provides a strong rationale to systematically monitor these outcomes besides tradi- tional clinical outcome measurese [ 4 ]. P ...

3 determinants of disability. This means that the ability of individuals to engage in everyday activities might be impacted by t ...

4 participation restrictions as a valued outcome domain therefore also reflects a gen- eral shift from a purely pathophysiologic ...

5 HRQOL of patients with early rheumatoid arthritis is below typical levels and that in particular the physical aspects of HRQOL ...

6 Specific Instruments PROs may also be specific to an area of primary interest [ 15 ]. These instruments are more limited in sc ...

7 support a claim in medical product labeling if the claim is consistent with the instru- ment’s documented measurement capabili ...

8 economics are that it allows comparison across different settings by using a com- mon unit of measurement (i.e., cost per QALY ...