Patient_Reported_Outcome_Measures_in_Rheumatic_Diseases

131 35-item version of the questionnaire. Finally a test–retest postal survey was con- ducted to improve the scaling properties, ...

132 complete, making it suitable for use in both research and clinical settings. However, the PsAQoL has been little used to dat ...

133 a patient-acceptable status. A change of 3 or more points is considered a relevant absolute change [ 63 ]. The PsAID questio ...

134 the following questions: “Considering all the ways your joints have affected you during the last week, circle the number tha ...

135 most frequently used tools were VAS and NRS single questions [ 14 , 48 ]. Fatigue assessed with NRS was shown to be an indep ...

136 Medical Outcomes Study Short Form-36 The Short Form-36 (SF-36) is a generic health profi le that has been developed with the ...

137 Appendix 1: BASDAI BASDAI Please draw a mark on each line below to indicate your situation in the past 7 days? How would yo ...

138 Appendix 2: ASAS Health Index U. Kiltz et al. ...

139 5 PROMs for Spondyloarthritis ...

14 0 Appendix 3: PSAID The EULAR Psoriatic Arthritis Impact of Disease: PsAID12 for clinical practice We want you to indicate ho ...

141 No diffi culty 0 1 2 3 4 5 6 7 8 9 10 Extreme diffi culty Result ×2 □ Discomfort Circle the number that best describes the ...

142 Social participation Circle the number that best describes the diffi culties you had to participate fully in social activi ...

143 van der Heijde D, van der Linden S, Dougados M, Bellamy N, Russell AS, Edmonds J. Ankylosing spondylitis: plenary discussio ...

14 4 Lukas C, Landewe R, Sieper J, Dougados M, Davis J, Braun J, et al. Development of an ASAS-endorsed disease activity score ...

145 Kiltz U, van der Heijde D, Boonen A, Bautista-Molano W, Burgos-Vagas R, Chiowchanwisawakit P, et al. Translation and cross- ...

146 De Wit M, Kvien T, Gossec L. Patient participation as an integral part of patient reported out- comes development guarantee ...

147 Bruce B, Fries JF. The health assessment questionnaire (HAQ). Clin Exp Rheumatol. 2005;23(5 Suppl 39):S14–8. Blackmore MG, ...

© Springer International Publishing Switzerland 2016 149 Y. El Miedany (ed.), Patient Reported Outcome Measures in Rheumatic Dis ...

150 Conceptual Model for SLE A conceptual model can be used to illustrate the humanistic and economic burden of key symptoms and ...

151 SLE patients, as well as in their working life. In terms of the impact on emotional well-being, patients with SLE frequently ...