Patient_Reported_Outcome_Measures_in_Rheumatic_Diseases

(ff) #1

222



  1. Miller FW, Rider LG, Chung YL, Cooper R, Danko K, Farewell V, et al. Proposed preliminary
    core set measures for disease outcome assessment in adult and juvenile idiopathic infl amma-
    tory myopathies. Rheumatology (Oxford). 2001;40:1262–73.

  2. Filocamo G, Davi S, Pistorio A, Bertamino M, Ruperto N, Lattanzi B, et al. Evaluation of
    21-numbered circle and 10-centimeter horizontal line visual analog scales for physician and
    parent subjective ratings in juvenile idiopathic arthritis. J Rheumatol. 2010;37:1534–41.

  3. Pincus T, Bergman M, Sokka T, Roth J, Swearingen C, Yazici Y. Visual analog scales in for-
    mats other than a 10 centimeter horizontal line to assess pain and other clinical data.
    J Rheumatol. 2008;35:1550–8.

  4. Sztajnbok F, Coronel-Martinez DL, Diaz-Maldonado A, Novarini C, Pistorio A, Viola S, et al.
    Discordance between physician's and parent’s global assessments in juvenile idiopathic arthri-
    tis. Rheumatology (Oxford). 2007;46:141–5.

  5. Miller ML, Ruprecht J, Wang D, Zhou Y, Lales G, McKenna S, et al. Physician assessment of
    disease activity in JIA subtypes. Analysis of data extracted from electronic medical records.
    Pediatr Rheumatol Online J. 2011;9:9.

  6. Rider LG, Feldman BM, Perez MD, Rennebohm RM, Lindsley CB, Zemel LS, et al.
    Development of validated disease activity and damage indices for the juvenile idiopathic
    infl ammatory myopathies: I. Physician, parent, and patient global assessments. Juvenile der-
    matomyositis disease activity collaborative study group. Arthritis Rheum. 1997;40:1976–83.

  7. Kimura Y, Walco GA. Treatment of chronic pain in pediatric rheumatic disease. Nat Clin Pract
    Rheumatol. 2007;3:210–8.

  8. Anthony KK, Schanberg LE. Pain in children with arthritis: a review of the current literature.
    Arthritis Rheum. 2003;49:272–9.

  9. Consolaro A, Ravelli A. Paediatric rheumatology: juvenile idiopathic arthritis—are biologic
    agents effective for pain? Nat Rev Rheumatol. 2013;9:447–8.

  10. Prince FH, Geerdink LM, Borsboom GJ, Twilt M, van Rossum MA, Hoppenreijs EP, et al.
    Major improvements in health-related quality of life during the use of etanercept in patients
    with previously refractory juvenile idiopathic arthritis. Ann Rheum Dis. 2010;69:138–42.

  11. Ruperto N, Lovell DJ, Li T, Sztajnbok F, Goldenstein-Schainberg C, Scheinberg M, et al.
    Abatacept improves health-related quality of life, pain, sleep quality, and daily participation in
    subjects with juvenile idiopathic arthritis. Arthritis Care Res (Hoboken). 2010;62:1542–51.

  12. Ruperto N, Ravelli A, Pistorio A, Malattia C, Cavuto S, Gado-West L, et al. Cross-cultural
    adaptation and psychometric evaluation of the childhood health assessment questionnaire
    (CHAQ) and the child health questionnaire (CHQ) in 32 countries. Review of the general
    methodology. Clin Exp Rheumatol. 2001;19:S1–9.

  13. Gutierrez-Suarez R, Pistorio A, Cespedes CA, Norambuena X, Flato B, Rumba I, et al. Health-
    related quality of life of patients with juvenile idiopathic arthritis coming from 3 different
    geographic areas. The PRINTO multinational quality of life cohort study. Rheumatology.
    2007;46:314–20.

  14. Oliveira S, Ravelli A, Pistorio A, Castell E, Malattia C, Prieur AM, et al. Proxy-reported
    health-related quality of life of patients with juvenile idiopathic arthritis: the pediatric rheuma-
    tology international trials organization multinational quality of life cohort study. Arthritis
    Rheum. 2007;57:35–43.

  15. Meiorin S, Pistorio A, Ravelli A, Iusan SM, Filocamo G, Trail L, et al. Validation of the child-
    hood health assessment questionnaire in active juvenile systemic lupus erythematosus.
    Arthritis Rheum. 2008;59:1112–9.

  16. Saad-Magalhaes C, Pistorio A, Ravelli A, Filocamo G, Viola S, Brik R, et al. Does removal of
    AIDS/devices and help make a difference in the childhood health assessment questionnaire
    disability index? Ann Rheum Dis. 2010;69:82–7.

  17. Vilca I, Munitis PG, Pistorio A, Ravelli A, Buoncompagni A, Bica B, et al. Predictors of poor
    response to methotrexate in polyarticular-course juvenile idiopathic arthritis: analysis of the
    PRINTO methotrexate trial. Ann Rheum Dis. 2010;69:1479–83.

  18. Huber AM, Hicks JE, Lachenbruch PA, Perez MD, Zemel LS, Rennebohm RM, et al. Validation
    of the childhood health assessment questionnaire in the juvenile idiopathic myopathies.


A. Consolaro et al.
Free download pdf