Patient_Reported_Outcome_Measures_in_Rheumatic_Diseases

213 Childhood Health Assessment Questionnaire The Childhood Health Assessment Questionnaire (CHAQ) [ 5 ] is the principal rheu- ...

214 limitations of CHAQ, namely the ceiling effect and poor sensitivity for children with relatively good function. The new vers ...

215 Other Measures of Physical Function Other validated tools for the assessment of functional ability in JIA patients include t ...

216 On average, patients with JIA have a poorer HRQOL as compared with healthy peers in both physical and psychosocial domains , ...

217 score minus the estimated mean for that health concept in the reference population divided by the estimated standard deviati ...

218 (for parents’ proxy reports) or even better than (for children’s self-reports) that of healthy children. The poorer PsH seen ...

219 recently validated. This tool has been named the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) [ 72 ]. The J ...

220 construct validity in both cross-sectional and longitudinal samples by yielding strong correlations with the JADAS [ 19 ] an ...

221 Berard R, Laxer RM. Improving the quality of care in children with juvenile idiopathic arthri- tis: a step in the right dir ...

222 Miller FW, Rider LG, Chung YL, Cooper R, Danko K, Farewell V, et al. Proposed preliminary core set measures for disease out ...

223 Juvenile dermatomyositis disease activity collaborative study group. J Rheumatol. 2001;28:1106–11. Brunner HI, Klein-Gitelm ...

224 Duffy CM, Arsenault L, Duffy KN, Paquin JD, Strawczynski H. The juvenile arthritis quality of life questionnaire—developmen ...

© Springer International Publishing Switzerland 2016 225 Y. El Miedany (ed.), Patient Reported Outcome Measures in Rheumatic Dis ...

226 with joint limitation, joint swelling, and deformity. Up to 50 % of patients with chronic gouty arthropathy have structural ...

227 Several recent efforts have highlighted the importance of measuring PROs as study outcomes. PROMIS is a system of highly rel ...

228 to ask about their feelings and the impact of gout on work productivity or social life more than about their physical examin ...

229 Recent Advances in PROs and PROMs in Gout The Outcomes Measure in Rheumatology (OMERACT) Perspective The Outcomes Measure in ...

230 for the respective PROs at OMERACT-11 [ 36 ]. Function assessment by Health Assessment Questionnaire-Disability Index (HAQ-D ...

231 Table 9.1 Validation data presented for patient reported outcomes in chronic gout Instruments Truth Discrimination Feasibili ...

232 Table 9.2 Instruments for patient reported outcome measurements in gout Instrument Scale Mean score Effect size VAS [ 7 ] 0– ...